Every day, Hamid is slowly losing control of his own body and his family is watching helplessly.
Meet Hamid Swaleh Omar, a 9 year old boy diagnosed with Ataxia Telangiectasia, a rare and progressive neurodegenerative disease.
What started as small signs has now turned into a daily struggle. Hamid is gradually losing his ability to control his movements. Simple things like walking, focusing his eyes, or even sitting steadily have become difficult.
Despite years of treatment in Kenya, including medication and physiotherapy, Hamid’s condition continues to worsen. Instead of improving, he is slowly regressing.
His family is now seeking a second opinion in India, hoping that specialists can offer advanced care and guidance.
One of the few promising options for his condition is gene therapy, which is currently not available in Kenya. Even if a cure is not possible, the goal is to slow the disease and give Hamid a better quality of life.
“We have tried everything we can locally, but our son is getting worse. We are not even sure what the next step is, we just want answers, and a chance to help him before it’s too late.”
This is not just about treatment. It is about giving Hamid a chance, a chance to live with dignity, to slow down this painful progression, and to give his family hope again.
For verification or direct support, you can reach Hamid’s mother:
+254798557502
Languages spoken: English, Swahili
Your support can make a real difference. Whether you donate, share his story, or connect the family to medical assistance, you are helping give Hamid a fighting chance.