🧠 Help Hamid Fight a Rare Disease

Meet Hamid Swaleh Omar, a 9 year old boy diagnosed with Ataxia Telangiectasia a rare and progressive neurodegenerative disease.

What started as small signs has now turned into a daily struggle. Hamid is gradually losing his ability to control his movements. Simple things like walking, focusing his eyes, or even sitting steadily have become difficult.

His condition:

• ⚠️ Loss of muscle control and coordination
• 💢 Severe tremors and involuntary movements
• 👁️ Vision difficulties (oculomotor apraxia)
• 🛡️ Weak immune system, frequent illness
• 📉 Growth failure and ongoing regression

Despite years of treatment in Kenya, including medication and physiotherapy, Hamid’s condition continues to worsen. Instead of improving, he is slowly regressing.

🌍 A Hope Outside Kenya

His family is now seeking a second opinion in India hoping that specialists can offer advanced care and guidance.

One of the few promising options for his condition is gene therapy,which is currently not available in Kenya. Even if a cure is not possible, the goal is to slow the disease and give Hamid a better quality of life.

💔 A Mother’s Plea

“We have tried everything we can locally, but our son is getting worse. We are not even sure what the next step is, we just want answers, and a chance to help him before it’s too late.”

This is not just about treatment. It is about giving Hamid a chance, a chance to live with dignity, to slow down this painful progression, and to give his family hope again.